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Icetoad š© š š¶ š š
@icetoad.eth
Hello /lifechanger community. Long time Farcaster user and $LCT holder here. My story: Less than a decade ago I was diagnosed with a rare genetic disorder called Fabry disease (https://www.wikipedia.org/wiki/Fabry_disease). It runs on my mom's side of the family & prevents my liver from making a certain enzyme which breaks down a glyco lipid. As such I now receive infusions of the missing enzyme every other week. My heart & kidneys are monitored closely for deterioration. I also experience a lot of nerve pain & digestive issues as well as chronic fatigue. About 6 yrs ago I moved back to Canada because healthcare costs in the USA were slowly bankrupting me. Even so I still visit friends and family in the US from time to time & purchase health insurance by the day for these trips. Unfortunately the insurance company has done their best to deny payment for a few emergency room visits I've endured. I am happy to answer any questions so people can learn about this disease. Ty for reading. Much <3 @lct @lifer
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Kristin Piljay ć
@kristinpiljay
I am so sorry to hear this happened to you and that you have this condition. I'm glad you were able to return to Canada for reasonable medical care. I also am a dual citizen and Canada was good to me in the 10 years I lived there and I still may return. So you had to go to the ER while visiting the US? What travel insurance were you using? I used to use Manulife when I was a resident of Canada but never needed to use it. In 2021 I went to the US and had a more robust insurance for visiting as I was still recovering from thyroid surgery and the very first day, I had an accident where I broke 7 ribs, lacerated my spleen and had a pneumothorax. I was in the hospital for a week. I was so scared the insurance would try to deny coverage, but they paid for everything and the deductible was $50. It took a year to process it all, but they paid it. Ironically it the insurance was under-written to United Health Care of all companies.
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Icetoad š© š š¶ š š
@icetoad.eth
Thank you for your message. My bad for missing this earlier. The company is called Primelink insurance and I want to say they were the only one I could find when I first moved back here that would cover me with Fabry disease. Sorry to hear about your accident but I'm glad to hear United covered it in the end.
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Kristin Piljay ć
@kristinpiljay
oh, I see. The other policies actually exclude this disease?
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