channels

Rare Disease Awareness

Rare Parenting

Quick FYI - Rare Parenting is a new online magazine for parents of children with disabilities, rare diseases and special needs. It is written by journalists, backed by doctors, and founded by a mother of a child with a severe rare disease. Check it out when you have a second -  https://www.rareparenting.com

🟣 🟢 🔵  /raredisease and /rareparenting are shining a light on families impacted by diseases that are rare in nature and thus has low awareness.  Individuals with rare diseases can go years without a diagnosis and see 10-20+ specialists before they even know what they have.

Paging Mr. Herman... it's Base szn
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